Change Of Plans

We went to Huntsman today for Layne to have a stent put in. They did the endoscopy and realized that there was no blockage. We were even given pictures. We obviously left with no stent being placed. In a way, it was a tough blow. Usually it's a good thing to hear that 'nothing' is wrong. It's hard to hear there's no blockage when up until that point every indication logically lead to that conclusion. It's mostly hard to hear when you're thinking that it's going to be a solution to open things up so the body will function better with less pain.
Layne has thought for awhile that the lack of space to the small bowel from the stomach will be what will kill him. He's just believed that because things weren't getting through - and, he didn't want a feeding tube (sounds too invasive at this point) that he would die from dehydration and/or starvation. He's really not getting the calories he needs.
Layne is someone that needs answers. Things have to make sense. He's going a bit stir crazy trying to figure out how he's going to die. He's even asked his oncologist and both doctors that we talked with yesterday about a stent being placed today. The not knowing is a very unsettling to him. Maybe it's anxiety that's going to have the final say.
I posted this and then realized it might be confusing. The fact that there is no obstruction automatically means that something else is going on. The thought now is how to work on motility of the stomach. It seems that the next natural conclusion is something going on with the function of the stomach itself. Nobody really knows. Whatever the issue is, he's not getting the nutrients or the calories he needs. That's obvious from the drastic weight loss and lack of energy. His brain is not quite what it used to be either. So, obviously the issues are still the same - just not because of the suspected cause. It was the idea of the blockage that led him to think that's what would eventually fail him. The shift in thought is to go from the blockage to the stomach - not to get away from the idea of his dying because of the nutrients and hydration needed. That's still a thing...just a different cause than what originally thought. I'm hoping that clarifies a bit. Maybe not. I might just review this tomorrow and figure out a much more concise way of sharing the concept.
Layne's a bit frustrated about the whole thing. At first he was saying it was a waste of time. He felt bad about wasting the time of Dr. Adler and the others that helped out. I tried my best to convince him that the procedure was done because those that just worked on him thought it was a good option. Everyone that looked at the scan and listened to the symptoms Layne shared believed that there must have been a blockage. I had to convince him that they wouldn't have done it if they thought there was no reason for it. We were told after the procedure that with about 95% of patients there is a blockage. At that point I told Layne that he was 'exceptional'. He didn't think it was funny. Hmm...