My family is having a reunion in Nauvoo this year. Layne isn't sure he's going to go. He's not sure he's up to doing things that take energy and mean lots of crowds. He also thinks he wants to go to be helpful and make sure things run smoothly for our family. He's not sure about leaving me in charge. I'm sure he thinks I'm capable. He just worries. He can't be running the show if he's not there.:}
I don't want him to feel like he's obligated to go. I know he's in pain and is constantly exhausted. If he were to go, he'd have to keep things low key. Sometimes he says he would be in pain wether he's at home or elsewhere, so he might as well go. This time he's saying he's not sure he wants to be in so much pain so far away from home. We'll see what happens in the next few days.
His Blog
Showing posts with label Travel. Show all posts
Showing posts with label Travel. Show all posts
Sunday, July 19, 2015
Tuesday, April 28, 2015
Another Scan
Layne will have another scan happening again this Thursday. We'll know the results on Friday. If things are still looking alright - he'll have chemo that afternoon. He's been feeling more pain lately and it could be an indication of tumor growth.
As far as logistics go...I'd rather know the results of the scan before I fly out there. I'm not sure I want to get there and find out that the treatment isn't happening because there's tumor growth. If that's the case...maybe we'll take a trip down to Galveston before heading back home. Or, maybe we'll take the couple we stay with out to dinner for being so kind to us.
Tuesday, September 9, 2014
Current Happenings
This blog has been neglected. It seems like there's so much to say and much of it needs background in order to make sense. I have some things jotted down in drafts - but, haven't edited/posted yet.
Currently, Layne is going to head to Houston this week to start a clinical trial at MD Anderson. We have had issues with insurance that are still being worked on. The team there and at Huntsman are trying to see what other details can be worked out in order to have our health insurance cover as much as possible. That being said, we will still reach our deductible and out of pocket maximums for this year. (We get to start all over again in January.) There are obviously also some travel costs associated with what we're doing. Layne will be there by himself at first and I will join him in time to be there after the infusion. He will probably need some care afterwards. We'll see how it goes and assess needs for future infusions as we go.
Layne feels good about the study scientifically. So, that helps. We'll see how long things last. After the first three infusions being done at MD Anderson he'll be able to switch off every other one with Huntsman. The only thing better would be to have all of the infusions taken care of here in the area instead of traveling. But, at least we can be grateful for an option.
We'll still being doing our usual 'learning' with the kids. They will be hanging out with relatives while we're both gone.
We are so grateful for the continued thoughts and prayers that come our way. Thank you. We have so many people offering to help and we appreciate it.
Currently, Layne is going to head to Houston this week to start a clinical trial at MD Anderson. We have had issues with insurance that are still being worked on. The team there and at Huntsman are trying to see what other details can be worked out in order to have our health insurance cover as much as possible. That being said, we will still reach our deductible and out of pocket maximums for this year. (We get to start all over again in January.) There are obviously also some travel costs associated with what we're doing. Layne will be there by himself at first and I will join him in time to be there after the infusion. He will probably need some care afterwards. We'll see how it goes and assess needs for future infusions as we go.
Layne feels good about the study scientifically. So, that helps. We'll see how long things last. After the first three infusions being done at MD Anderson he'll be able to switch off every other one with Huntsman. The only thing better would be to have all of the infusions taken care of here in the area instead of traveling. But, at least we can be grateful for an option.
We'll still being doing our usual 'learning' with the kids. They will be hanging out with relatives while we're both gone.
We are so grateful for the continued thoughts and prayers that come our way. Thank you. We have so many people offering to help and we appreciate it.
Monday, February 25, 2013
Tick Tock
February 16, 2013
Cancer seems to take so long to figure out. There are times I think Layne is a human science experiment. I'm sure that if we did a survey, most cancer patients would feel that way. It would be great if there were a set of treatments that worked for everyone, you did them and you were done. I'm sure if we could figure that out - we'd save lives, improve the quality of life for many and even make a few bucks in the process. But alas, it doesn't work that way.
One of the things that continues to amaze me is the time it takes for each step along the way. For example, when Layne first had a colonoscopy to attempt an assessment of what was going on, the cancer was found. I don't think surgery happened for another month. (I'll have to check the calendar, but I really think it took about that long.)
The reality is that as we're trying to figure out what's going on - time keeps moving forward. Time is not something that's on the side of the cancer patient. There are other things we'd love to be doing with our time together besides chemo treatments. There are other things we'd love to spend our money on.
When we first learned that Layne would be taking some time away from work, we thought we could travel a little bit (not very far or very often) with our family. It doesn't really work that way. The schedule has to work around chemo and the finances have to work around treatments, prescriptions, and travel for more surgery/treatments.
It might sound like a complaint, but it's really not. It's just the way it is. I'm glad we do get to have chances to get out and do a couple of things. We'll have the opportunity to go to Hawaii, get the kids to Disneyland (we think), head to Seattle, and maybe even head to Southern Utah in order to see the sights (and family). (We haven't done much planning on the last one or another trip to CA to see Layne's folks.)
Amidst all the rambling, I think the point is that as we're busy living our lives in a way that we hope will help Layne be around a little longer - we're also aware of the fact that it all takes time. And, that is something I wish we had more of to work with right now.
Cancer seems to take so long to figure out. There are times I think Layne is a human science experiment. I'm sure that if we did a survey, most cancer patients would feel that way. It would be great if there were a set of treatments that worked for everyone, you did them and you were done. I'm sure if we could figure that out - we'd save lives, improve the quality of life for many and even make a few bucks in the process. But alas, it doesn't work that way.
One of the things that continues to amaze me is the time it takes for each step along the way. For example, when Layne first had a colonoscopy to attempt an assessment of what was going on, the cancer was found. I don't think surgery happened for another month. (I'll have to check the calendar, but I really think it took about that long.)
The reality is that as we're trying to figure out what's going on - time keeps moving forward. Time is not something that's on the side of the cancer patient. There are other things we'd love to be doing with our time together besides chemo treatments. There are other things we'd love to spend our money on.
When we first learned that Layne would be taking some time away from work, we thought we could travel a little bit (not very far or very often) with our family. It doesn't really work that way. The schedule has to work around chemo and the finances have to work around treatments, prescriptions, and travel for more surgery/treatments.
It might sound like a complaint, but it's really not. It's just the way it is. I'm glad we do get to have chances to get out and do a couple of things. We'll have the opportunity to go to Hawaii, get the kids to Disneyland (we think), head to Seattle, and maybe even head to Southern Utah in order to see the sights (and family). (We haven't done much planning on the last one or another trip to CA to see Layne's folks.)
Amidst all the rambling, I think the point is that as we're busy living our lives in a way that we hope will help Layne be around a little longer - we're also aware of the fact that it all takes time. And, that is something I wish we had more of to work with right now.
Subscribe to:
Posts (Atom)